Data Protection & Data Security Organisational and legal issues
The use of sensitive data in the health sector requires new data protection, data security, role and data ownership concepts in the collection, processing and, in particular, evaluation of this data. In cooperation with epidemiological cancer registers, for example, concepts have been developed for the data protection-compliant cancer registration, which are based on two institutionally separate bodies, the trust authority and the registry. The trust centre collects patient-related cancer reports, encrypts the personal identifying data (such as name, address,...) and then transmits this encrypted information - together with the epidemiological data remaining in plain text - to the register centre. The Registry shall permanently store the encrypted personal identifying and epidemiological reporting data. If several, often significantly different reports refer to the same cancer case, they are combined using control numbers and condensed into an epidemiologically evaluable data set.
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Publications
2024
Clustering breast cancer patients based on their course of treatment
Kolja Blohm and David Korfkamp and Christian Lüpkes; Gesundheit – gemeinsam. Kooperationstagung der GMDS, DGSMP, DGEpi, DGMS und der DGPH; 2024
Comparison of Ensemble Learning Methods for Classification in Cancer Registries
Nico Schult and Timo Wolters and Marc Hermes and Klaas Dählmann and Andreas Hein; Digital Health and Informatics Innovations for Sustainable Health Care Systems; 8 / 2024
Data Quality in Clinical Cancer Registries: Imputation of Missing Values through Related Information
Timo Wolters and Klaas Dählmann and Joachim Hübner and Anja Groeneveld and Christian Lüpkes and Andreas Hein; Gesundheit – gemeinsam. Kooperationstagung der GMDS, DGSMP, DGEpi, DGMS und der DGPH; 9 / 2024
Eine Modellierung des Potenzials einer grenzüberschreitenden stationären Versorgung in der Ems-Dollart Grenzregion mit Hilfe eines differenziellen Erreichbarkeitsindexes
Specht, Sebastian and Hein, Andreas; Jahrestagung 2024: Gesundheitliche Ungleichheiten in einer Welt im Wandel. Arbeitskreis Med. Geogr. und Geogr. Gesundheitsforschung.; 09 / 2024
Hörschäden, Krankheiten der Schilddrüse und sonstiger endokrinen Drüsen bei Langzeit-Überlebenden einer Krebserkrankung im Kindes- oder Jugendalter – Ergebnisse der VersKiK-Studie
Pietro Trocchi and Hiltrud Merzenich and Claudia Spix and Ekaterina Alshchenko and Christian Lüpkes and Peter Ihle and Jutta Küpper-Nybelen and Gabriele Calaminus and Katja Baust and Thorsten Langer and Judith Gebauer and Dirk Horenkamp-Sonntag and Patrik Dröge and Thomas Ruhnke and Ursula Marschall and Melanie Klein and Cécile M Ronckers and Enno Swart; Gesundheit – gemeinsam. Kooperationstagung der GMDS, DGSMP, DGEpi, DGMS und DGPH; 9 / 2024
Improving the Care of Severe, Open Fractures and Postoperative Infections of the Lower Extremities: Protocol for an Interdisciplinary Treatment Approach
Steffen Rosslenbroich, Marion Laumann, Joachim Hasebrook, Sibyll Rodde, John Grosser, Wolfgang Greiner, Tobias Hirsch, Stefan Windrich, Michael J Raschke; JMIR Research Protocols; 09 / 2024
Kardiale Spätfolgen nach Krebs im Kindesalter
Hiltrud Merzenich and Pietro Trocchi and Claudia Spix and Ekaterina Alshchenko and Christian Lüpkes and Peter Ihle and Jutta Küpper-Nybelen and Gabriele Calaminus and Katja Baust and Thorsten Langer and Dirk Horenkamp-Sonntag and Iris Meier and Patrik Dröge and Thomas Ruhnke and Ursula Marschall and Melanie Klein and Cécile M Ronckers and Enno Swart; 23. Deutscher Kongress für Versorgungsforschung (DKVF); 9 / 2024
Large-Scale Phenomena and Small-Scale Heterogeneous Data: Cartographic Challenges in a Cross-Border Comparison of Healthcare Systems
Specht, S. and Schweda, M. and Hein, A.; Abstracts of the ICA; 2024
Pre-Processing of Categorical Features Within Medical Analysis Systems
Marc Hermes and Timo Wolters and Nico Schult and Andreas Hein; Digital Health and Informatics Innovations for Sustainable Health Care Systems; 8 / 2024
