The use of sensitive data in the health sector requires new data protection, data security, role and data ownership concepts in the collection, processing and, in particular, evaluation of this data. In cooperation with epidemiological cancer registers, for example, concepts have been developed for the data protection-compliant cancer registration, which are based on two institutionally separate bodies, the trust authority and the registry. The trust centre collects patient-related cancer reports, encrypts the personal identifying data (such as name, address,...) and then transmits this encrypted information - together with the epidemiological data remaining in plain text - to the register centre. The Registry shall permanently store the encrypted personal identifying and epidemiological reporting data. If several, often significantly different reports refer to the same cancer case, they are combined using control numbers and condensed into an epidemiologically evaluable data set.
Kolja Blohm and David Korfkamp and Christian Lüpkes; Gesundheit – gemeinsam. Kooperationstagung der GMDS, DGSMP, DGEpi, DGMS und der DGPH; 2024
Nico Schult and Timo Wolters and Marc Hermes and Klaas Dählmann and Andreas Hein; Digital Health and Informatics Innovations for Sustainable Health Care Systems; 8 / 2024
Timo Wolters and Klaas Dählmann and Joachim Hübner and Anja Groeneveld and Christian Lüpkes and Andreas Hein; Gesundheit – gemeinsam. Kooperationstagung der GMDS, DGSMP, DGEpi, DGMS und der DGPH; 9 / 2024
Steffen Rosslenbroich, Marion Laumann, Joachim Hasebrook, Sibyll Rodde, John Grosser, Wolfgang Greiner, Tobias Hirsch, Stefan Windrich, Michael J Raschke; JMIR Research Protocols; 09 / 2024
Marc Hermes and Timo Wolters and Nico Schult and Andreas Hein; Digital Health and Informatics Innovations for Sustainable Health Care Systems; 8 / 2024
Kolja Blohm and David Korfkamp and Joachim Hübner and Florian Oesterling and Stefanie Schulze and Andreas Hein; GMS Medizinische Informatik, Biometrie und Epidemiologie; 8 / 2024
Klaas Dählmann and Timo Wolters and Stefan Meisegeier and Christian Lüpkes and Andreas Hein; Gesundheit – gemeinsam. Kooperationstagung der GMDS, DGSMP, DGEpi, DGMS und der DGPH; 9 / 2024
David Korfkamp, Kolja Blohm, Christian Lüpkes, Andreas Hein; 68. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e.V. (GMDS); 2023
Sebastian Specht, Andreas Hein, Christian Lüpkes, Mark Schweda; 68. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e.V. (GMDS); 2023